Terminally-Ill Daughter

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Couple Chooses To Give Birth To Their Terminally-Ill Daughter So Her Organs Can Be Donated

The Logical Indian

February 28th, 2017

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Source: Timeline of Keri Young and Royce Young

Everything looks perfectly okay from the outside. Would be mother Keri Young from Oklahoma, the US, is in the seventh month of her pregnancy. She can hear the baby’s heartbeat, she can feel her kick but there’s a greater undertone of melancholy that has gripped her as she knows she won’t get to see her daughter grow up.

In the 19th week of her pregnancy, Keri and her husband Royce went for an ultrasound scan to find out their baby’s sex. They came to know that it would be a baby girl but it tore their world apart when they were informed that their daughter had a terminal condition known as anencephaly.

Keri and Royce have decided to name their daughter Eva, which means “life”. She would be born with a perfect heart, perfect body but with a half-developed brain. The condition is so rare that it only occurs in six births per every 1,000 births in the US. Unfortunately, babies born with this condition tend to only tend to survive for a few days.



Such a news would have broken any mother. The Youngs could have induced an early pregnancy, but they chose to take a different path. The couple has decided to take the pregnancy to full-term so that Eva’s organs could be donated after her death. They feel they cannot save Eva but she can save the lives of many others. Keri and Royce also have a 2-year-old son named Harrison.

On a Facebook post, Keri wrote: “This is our daughter’s perfect heart. She has perfect feet and perfect hands. She has perfect kidneys, perfect lungs and a perfect liver. Sadly, she doesn’t have a perfect brain. We found out recently she has anencephaly and is terminal. Faced with terrible options we have decided to continue the pregnancy to full term so Eva, which literally means life, can grow strong and give life to multiple people through organ donation.”


This is our daughter's perfect heart. She has perfect feet and perfect hands. She has perfect kidneys, perfect lungs and…

Posted by Keri Young on Tuesday, December 13, 2016


The doctors who were diagnosing Keri told the couple that the baby’s heart valves could be donated to someone in need, along with her kidneys, liver and possibly her pancreas. Her lungs could also be donated for scientific research.

Royce, who writes about basketball for ESPN.com has paid a huge tribute to his pregnant wife’s selflessness in a beautiful viral post. On 17 February, Royce posted a photo of Keri on his Facebook wall. In the photograph, Keri is seen sleeping peacefully on their couch. On his post, he wrote:

“The other night, before I left for New Orleans, I was watching my beautiful wife sleep peacefully on the couch.

I looked at her laying there, her belly big with our daughter kicking away, a daughter that won’t live more than a few days, and it just overwhelmed me of how incredible this woman is. I’m a writer so when I’m feeling something, I tend to have to write it down. So I pulled out my phone and started writing what I was thinking. And I realized tonight sitting a thousand miles away in a hotel room, especially after meeting this awesome kid named Jarrius that’s been everywhere at All-Star Weekend who needs a liver transplant, that instead of just keeping this one for me like I normally do, I should tell everyone else just how incredible Keri Young is. (I also miss her five seconds after I leave the house for a trip so I’m thinking about her all the time anyway.)



I thought back to the moment where we found out Eva wasn’t perfect, and how literally 30 seconds after our doctor told us our baby doesn’t have a brain, somehow through full body ugly crying, Keri looked up and asked, “If I carry her full term, can we donate her organs?” I remember our doctor putting her hand on Keri’s shoulder and saying, “Oh honey, that’s so brave of you to say.” Like, how nice of you, but come on. Keri meant it. There I was, crestfallen and heartbroken, but I momentarily got lifted out of the moment and just stood in awe of her. I was a spectator to my own life, watching a superhero find her superpowers. In literally the worst moment of her life, finding out her baby was going to die, it took her less than a minute to think of someone else and how her selflessness could help. It’s one of the most powerful things I’ve ever experienced. In the eight years we’ve been married (and 15 years together) I’ve had a lot of moments stop me in my tracks where I thought, “holy crap, this woman I’m married to, lucky me.” But this one was different. It hit me that not only am I married to my very best friend, but to a truly remarkable, special human being.



This whole process has been rough, but I say that as someone watching from the bleachers like the rest of you. Keri has been in the trenches the entire time, feeling every little kick, every hiccup and every roll. She’s reminded every moment of every day that she’s carrying a baby that will die. Her back hurts. Her feet are sore. She’s got all the super fun pregnant stuff going on. But the light at the end of her nine-month tunnel will turn into a darkness she’s never felt before a couple hours or days after Eva is born. She’s the one that is going to deal with all that comes with having a baby– her milk coming in, the recovery process, etc, but with no snuggly, soft, beautiful newborn to look at to remind you that it was all worth it.

We made our choice to carry Eva to full term for a lot of reasons, but the first and foremost was to donate her organs. We don’t say that to try and sound like great people or anything. It was just a practical endgame that in our minds, before we came to the realisation Eva is alive and our daughter deserves to meet her mama and daddy, gave us a purpose to continue on. Donating was on Keri’s mind from darn near the second we found out and while the experience of holding and kissing our daughter will be something we cherish forever, the gift(s) she’s got inside that little body of hers is what really matters. Keri saw that almost instantly. That kid Jarrius wears a shirt that says “It Takes Lives To Save Lives.” I couldn’t stop thinking about that all day. There’s another family out there hurting and hoping for a miracle for their baby, knowing full well someone else’s baby will need to die first. Eva can be that miracle.

We’re getting closer to the finish line, and while it’s going to be amazing to run through that tape and meet Eva, it comes at a cost. We’ll go to the hospital for a birth, and go home without a baby.

A lot of people say things like, “I wouldn’t change anything” after a trying circumstance, but I’m not about to say that. I would definitely change this if I could. I want my daughter to be perfect. I want her to blow out her candles on her first birthday. I want to watch her bang her head on our coffee table trying to learn to walk. I want her to run up a cell phone bill texting boys. I want to walk her down an aisle. I want to change it all so, so badly. But I can’t. This is our reality. And there’s no stopping it.

Whenever Harrison gets hurt or has to pull a band-aid off or something, Keri will ask him, “Are you tough? Are you BRAVE?” And that little boy will nod his head and say, “I tough! I brave!” I’m looking at Keri right now and I don’t even have to ask. She’s TOUGH. She’s BRAVE. She’s incredible. She’s remarkable. She’s cut from a different cloth, combining wit, beauty, courage, silliness, character and integrity into one spectacular woman. And somehow, she’s my wife. Not that I needed some awful situation like this to actually see all of that, but what it did was make me want to tell everyone else about it.”


The other night, before I left for New Orleans, I was watching my beautiful wife sleep peacefully on the couch.I…

Posted by Royce Young on Friday, February 17, 2017


The Logical Indian salutes this Oklahoma couple for showing such a great courage and working for this noble cause. Such a story is truly inspiring for our generation.

Thank you!

Please also ensure that change begins at home by
pledging to practise/teach gender sensitivity

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